First Vietnamese PID Patients-Doctors Meeting in Hanoi in Dec. 3, 2015 | Công ty Dược Phẩm Bình Việt Đức


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First Vietnamese PID Patients-Doctors Meeting in Hanoi in Dec. 3, 2015

IPOPI AND THAIIPOPI

IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide
Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.
The Thai Patient Organisation for Primary Immunodeficiencies (ThaiIPOPI)

INTRODUCTION

Bivid Pharma and IPOPI have organized First Vietnamese Primary Immunodeficiency Patients-Doctors Meeting in Hanoi in 3 December 2015. The meeting concentrates on Primary Immunodeficiencies: diagnosis and treatment options; The PID experience in Vietnam: Physician and Patient perspective; IPOPI Presentation; Running a patient group in Vietnam: experience from haemophilia society; Discussion and agreements of next steps for IPOPI in Vietnam.
Primary Immunodeficiencies (PID) are a large and growing group of over 250 different disorders caused when some components of the immune system (mainly cells and proteins) do not work properly. Whilst PIDs are generally recognized as rare disorders, some are more common than others and taken as a whole they represent an important group of people whose lives are profoundly impacted by their condition.
PID are caused by genetic defects of the immune system which are hereditary. The immune system normally helps the body fight off infections by germs (or ‘micro-organisms’) such as bacteria, viruses, fungi and protozoa. Because their immune systems do not work properly, people with PIDs are more prone than other people to infections. When PIDs are left underdiagnosed or misdiagnosed, the immune system remains defective, often leading to illness, disability, permanent organ damage or even death.

GUEST

Professors, doctors, physicians, pharmacists, experts on PID in Vietnam
Doctors, pharmacists, staff practising at the hospitals in the North of Vietnam
Individuals, patients, organizations cerncerning about PID

PROGRAM

Time

Agenda Item

Speaker

09.00-10.00

Registration

 

10.00-10.15

Welcome & Introduction

Prof Le Huong

Mrs J Drabwell IPOPI

10.15-11.00

Primary Immunodeficiencies: diagnosis and treatment options

Prof. Martin Van Hagen

GS. Martin Van Hagen

11.00-11.30

The experience of SEAPID and working with ThaiPOPI in Thailand

Dr. Narissara Suratannon

11.30-12.00

The PID experience in Vietnam: Physician perspective

TBC

12.00-13.00

Break

 

13.00-13.30

IPOPI Presentation

J Prevot

13.30-14.00

The PID environment in Vietnam: Patient Perspectives

All participants

14.00-14.30

Running a patient group in Vietnam: experience from haemophilia society

Prof. Nguyen Anh Tri

14.30-15.00

Discussion & agreements of next steps

All participants

15.00-end

Closure

 

PLACE

Hanoi

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